Hot Off the Press- RARE August News! 

Hello Devil! This is the August edition of the 2017 Global Genes Newsletter, your source for RARE news.
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August 1, 2017
Only 30 Days Left To Register For the RARE Patient Advocacy Summit!
Register Now for the 2017 RARE Patient Advocacy Summit before it's too late! With over 400 attendees and 80 speakers, this is your chance to Connect, Collaborate, and Activate September 14-15 at Hotel Irvine in Irvine, CA! Network with fellow advocates, drivers, and innovators in the Rare Disease Community as they uniquely share their experience, knowledge, and expertise as conference presenters and or participants.
New RARE Webinar: Building the Bridge Between Foundations and Industry
Are you a foundation looking for an industry partner? How about a biotech pharmaceutical company looking to know about your patient community? The bridge between patients and industry can be a tough one to cross. This RARE Webinar features an example of a successful patient and industry partnership. It will take place Tuesday, August 22nd, 2017 at 10:00am PST. Register Now!
Help Global Genes Raise Up To $10,000 With Horizon's RAREis campaign!
Text “RARE” to 565-12, and Horizon Pharmaceuticals will donate $1 (up to $10,000) to Global Genes. This campaign will continue until August 16, so be sure to spread the word! Participants will receive a return text with a link to a mobile website where they can upload a photo with the name of the rare disease they support. Select photos will be featured on the RAREis Instagram page, and individuals are encouraged to post their photo and message of support on social media channels using the hashtag “#RAREis”.
New RARE Foundation Alliance

Global Genes RARE Foundation Alliance members exchange best practices and share lessons learned to drive better outcomes for the entire Rare Disease Community. Global Genes aims to provide a culture of collaboration to support the activities of the RARE Foundation Alliance. Through the creation of an information exchange, we give rare organizations the opportunity to become stronger in many areas. Please help the Global Genes team in welcoming more than 30 NEW members to our RARE Foundation Alliance. 
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R.S.V.P. for the tribute to

champions of hope
R.S.V.P. today to attend the 6th Annual Tribute to Champions of Hope Saturday, September 16, 2017 at the Grove of Anaheim in Anaheim, Ca. The Tribute to Champions of Hope provides an opportunity to recognize individuals who are true agents of change and innovation. Award recipients are honored for their commitment and dedication to the development of treatments, therapeutics, and levels of care that have improved the lives of patients and families who have been touched by rare disease. Please join us for this Rare occasion.
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